Baby Hilario's sight saved by surgery

Six-month-old Baby Hilario from Timor-Leste was born prematurely. He was later diagnosed with bilateral retinopathy of prematurity, a serious condition affecting both eyes. He required vitreo-retinal surgery to save his sight.

Hilario and his mum, Ninevia, arrived in Sydney on 7 December to undergo pre-surgery testing and receive specialist medical care. Surgery was successfully performed on 12 December at The Children’s Hospital at Westmead under the care of ophthalmologic surgeon Dr Amanda Ie and her dedicated medical team.

Hilario and Ninevia were initially hosted by ROMAC Eastern Chair Anita Robinson, and then supported by the wider Eastern Region Committee. After several days in hospital, they stayed at Ronald McDonald House Westmead while Hilario continued his recovery and awaited medical clearance.

Eastern Region Committee member Maggie Thorn played an instrumental role in supporting Hilario and Ninevia throughout the post-surgery period. Her dedication and compassion are greatly appreciated.

During their stay, Ninevia also received heartfelt support from Sister Eufemia and Marzieh Brentall, both originally from Timor-Leste and now living in Sydney. Their kindness, cultural connection, and home-cooked food provided comfort and encouragement. They were a great source of strength to both Ninevia and the Eastern Region team.

Following a successful post-surgery review, Hilario and Ninevia were cleared to return home and departed Sydney on 20 December, just in time to celebrate Christmas with family and friends in Timor-Leste.

This beautiful outcome was made possible through teamwork, generosity, and care. Sincere thanks to everyone who played a part in Hilario’s journey.